Thursday, October 23, 2008


Ok - enough giveaways? huh??? lol

Let's see - "a" is still crabby a LOT of the time as since September, he got moved to a new classroom at the daycare/preschool and he no longer gets to take a nap. It's killing ME. Not him, nope, he's just crabby. Me? I can't stand dealing with him.

"A" on the other hand, is depressed and grouchy - yeah! ugh. He got "let go" from his new job after three weeks. I won't go into it as that would only tick him off. But, not good.

Me? I've been sick for three weeks - however, I am definitely on the right side of things now. Still have a bit of flem that finds its way out at odd moments and definitely run down. But, not at the want-to-go-to-bed-at-6 stage any more.

However, in other health matters? I've got another doctor appointment today... because my "episodes" that are very similar to TIAs, but we're not supposed to call them that... are back. They've been back for a little while. However, when they first started, it was because my medication wasn't working as well as it was supposed to - the INR from my blood tests was low (that's how we monitor the medication)... and in the past, when I've had "episodes" it was always because my INR was low. So, the easy answer was to increase my medication and bring up that INR as in the past, every time we did that - my "episodes" stop. Well, it's been a couple of weeks now... and my INR from last Thursday was normal. Only my "episodes" didn't stop. In fact, at this point, they are more frequent. If the medication I'm taking wasn't so dangerous, it would be easy to suggest (and believe me, I've thought about it) that we should just increase it a little more. However, my doctor that monitors my INR would have a heart attack over concern that I would spontaneously develop internal bleeding and bleed to death - yes, the medication is THAT dangerous. Add to it that mom died from inter-cranial bleeding? And they are VERY nervous just having me at the range I'm at now. Now that this range isn't "effective" means something else needs to be done, or it's just a matter of time before I have a second stroke. Problem? They don't know what else to do. I've got a few ideas - but they've been rejected in the past; perhaps now is a time for more drastic or alternative measures. Don't know. Know I don't have a ton of money for a ton of medical bills. So, basically, I'm just putting out caution-flags every time they want to run a $5000 test that they've ran five times before with no results. My primary thought is we need to do something DIFFERENT. It's not like I haven't had these symptoms before. I've had them off and on for two years now. Only difference? the medication isn't preventing them any more. So until they are confident that there's more than 1 in a 1000 chance we'll find something in the test? I'm not interested. Right now? they just want to run the test because if it is the 1 in a 1000 problem - they want to know. HOWEVER, a) it's probably NOT going to be the 1 in a 1000 - because my symptoms are MILD - very, very mild. If it was the 1 in a 1000 - my symptoms would be SEVERE - not MILD. b) they can't tell me that the treatment if they did find the 1 in a 1000 would be any different - well, except that they would have me in the hospital. But the treatment would NOT change. So, what's the point? If my symptoms do become severe, I'd be happy to go to the hospital. But, they aren't. I'm functioning. I'm going to work, I'm cooking dinner, I'm even knitting. I keep asking them what the point of the test would be. Their only answer - it rules something out. That "something" isn't going to change my treatment if they found something... so again "what's the point?".

Sorry for the vent - I'm prepping for my appt. this afternoon... preparing my argument that they'll probably ignore and we'll end up ding the test anyway. ugh. double-ugh.

Other than that? Things are hunky-dory. Except for the bill collectors calling all day long and the car in the parking lot that doesn't run and two grouchy kids. My life is awesome.

No comments: