I'm still struggling with a lot of strong emotions over my health. I'm not angry with the one doctor who was a complete jerk anymore. BUT, I'm angry, or really - mostly upset with the whole process and system that allowed a significant diagnosis not get communicated clearly to the people (like me and my regular doctor) who needed to know what's up.
If we had known it was B6 when my symptoms first started fluctuating again, we might have had some idea what to do next. In the meantime, my over-all condition has worsened and it might have caused permanent damage. In the meantime, it's been two more years where we didn't get better and might add at least that much more time to the recovery period. A period of time which is really critical to "a"s development. I've missed out on so much because I'm always needing to go lay down - because I'm tired or don't feel well. The last two years seem like such a waste.
I've got an appointment with a Naturopathic doctor tomorrow. Have high hopes. I can't find anything online regarding flushing B6 out of your system, just that it takes years to work itself out... so I'm still going to ask her opinion, but not be surprised if I just need time. I am hoping though that she can advise me on the smartest diet changes to make to try to still have a healthy diet but with as little B6 as possible while I detox from it. She's very clear that she plans on spending at least an hour with me tomorrow and that she works with whole body healing types of things. One of the things that has bothered me is that I have so many nutrient deficiencies (and this one toxicity) -- without a root cause. And pretty much the only discussion my doctors have is to throw me on more supplements (and take me off of the one). I think I eat a balanced diet (not a perfect diet, but one with variety)... and it would be good to know what (if anything) I am messing up.