Thursday, May 23, 2013

MTHFR - progress

So, the naturalpathic doctor I was working with was a little disappointed that my symptoms didn't show immediate, drastic improvement.

I wasn't surprised.

I knew that my diet wasn't perfect going in, but also knew that it was fairly well balanced and adding a few supplements like probiotics and mutlivitamins has been tried before. I figured this was going to take some time and that if it helped, it was going to help a little, after a while of following it.

She was so disappointed, that she said that I should wait to reach out to her after things improve on their own (wtf?).

My goal was that she helped me 'heal the gut' which didn't happen 100%, but certainly was given the ol' college try. And that once she had completed that I was going to try to see about doing some travel to see an MTHFR specialist (none in Iowa nor any immediately surrounding states).

So, I figured... ok. I can continue the treatment she started me on as-is and might as well start looking for the MTHFR specialist so I can see about setting up an appointment, maybe this fall. I was thinking about screening both of my sons (both are having some health issues that remarkably seem like issues I experienced at their age and might be remotely connected to MTHFR). So, after digging through several web sites and referrals, I decided to call a doctor in Colorado... my future daughter-in-law has been wanting to go to Colorado and they are talking about a wedding out there... but I figured I'd find out a good time to start seeing him and see if he thought I ought to screen the boys before hand.

They got me a skype appointment with the doctor for the following day. I almost fell out of my chair. I just didn't expect that he would consider a first appointment on-line without an initial visit in office.

He gave me some changes to make to my routine and told me some MTHFR-specific recommendations for updates to my supplementation routine.

It took two weeks. Two weeks before I saw unbelievably dramatic improvement in my health circumstances. My son asked me last night what I was doing sitting in the living room watching tv. Why wasn't I laying down in bed? Because I can. I'm doing my best not to overdo things. And I had a little bit of an issue this morning because due to dental issues I'm currently on a liquid diet and it does appear that my supplements need FOOD in the tummy not just liquids (mashed potatoes helped).

I am amazed. Absolutely amazed.

I have taken a small break from the list of supplements from the naturalpathic doctor though my intention is to add them back to the routine. I'm just hesitant to do so while I'm on a liquid diet. I still have more supplement and routine changes to make to become fully compliant with his recommendations (and you can believe I fully intend to do just that).  But so far, all I've done is increased my methyl guard plus from Thorne up to five a day (to save money and use up the supply I have) - which will get replaced with another source next month so I can take fewer pills. Added liquid D3. And just yesterday I started NAC - am holding off to see if NAC bothers me every day or if it was just the lack of food in my tummy this morning that threw me off.

Now, admittedly... this might just be another remission of symptoms (like last summer). It is far too soon to determine that it's a cure. I'm thinking a couple of years of remission will tell me that it is more than just a remission... but that doesn't mean I'm not enjoying it.

Here's some ideas of my symptoms before and after treatment - and you tell me that you don't see something worth being happy about! (Scale is from 0 to 10 - 0 is there is no symptom and 10 is at the point where I wonder why I'm not in the hospital).

Soul-crushing, bone deep fatigue - was an 8, now a 1
Leg pain - between a 2 and a 4, now a 0
Upper arm/chest pain - up to a 6, now a 0
Wrist pain - 6, now a 2 (still dealing with the vestiges of a tendonitis flare)
Upper back pain - 2 (hasn't been that bad, post-gall bladder removal), now a 0
Headache - 6, now a 0
Waking up feeling refreshed - was 5, now a 2 (has been 0 a couple of times)
Diarhhea - 5 (9 days out of 10), 0 for seven days now
Bad mood, sad, hopeless - was 6, now a 0
Numbness/tingling on right side - was a 3, now 0
Foggy brain - was 6, now a 0
Inability to focus on a given task - was 8, now 2
Desire for Isolation - was 8, now 4 (but that's actually related to dental issue - need to get that resolved)
Dizziness/balance issues - was 6, now 1 (which might be related to liquid diet more than anything else)

I'm just starting week three of the new treatments and I can only hope and dream for more resolution to my health issues.

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